This prototype initially integrates two sets of routine data of stroke survivors who live in the London borough of Lambeth. The researchers are linking records from the South London Stroke Register with records from Lambeth Datanet.
The South London Stroke Register records all first-ever strokes that occur in 22 electoral wards in Lambeth and Southwark. It contains information about 5,000 patients. Researchers asks people who join the register for information at the time of their stroke and then every year thereafter – including information about their health. Lambeth Datanet contains information about patients registered at 51 GP practices in Lambeth.
‘We are starting with small steps,’ says clinical research fellow Dr Uy Hoang. ‘We want to prove in the first instance that this could be useful for different users. We want to demonstrate how valuable such a system could be with just two sets of data in one local borough. Then we will start to expand the system and incorporate more data and information.’
The design of the system will enable the future input of routine data from numerous sources –hospital records, mental health services records, local authority records, for example – and input guidelines and research study data. ‘We are working on the logistics of linking different systems,’ says Dr Hoang.
The CLAHRC stroke research team is liaising closely with colleagues who have worked on the integration of the South London Stroke Register data with air quality data in the Stroke and Air Pollution (STAR) project funded by the NIHR Biomedical Research Centre (BRC) at Guy's and St Thomas' NHS Foundation Trust and King's College London, and with organisers of the CRIS (Clinical Records Integrative Search) database hosted by the NIHR BRC at South London and Maudsley NHS Foundation Trust (SLaM) and King's College London that contains anonymised records of people who have used services run by SLaM. CRIS is used for research purposes.