The development of a PROM for long term conditions

OxfordGeneric Health Relevance
Start Date: 1 Jan 2014


Working with patients to develop and test a questionnaire for 'Patient Reported outcome Measures' (PROMs), measuring a broader range of important aspects of living with long-term conditions, to help improve the care of people with long-term conditions.


The aim of this project is to develop a short questionnaire for patients with long-term conditions to report their experiences of their conditions and to assess their quality of life – a Patient Reported Outcome Measure (PROM) – and to provide evidence for its reliability and validity.

How could this benefit patients?

More accurate indicators of how NHS services are performing, that truly reflect patients own experiences with long-term conditions, should lead to patient-focused improvements in both quality of care and patient outcomes.

Prof Ray Fitzpatrick