Increasing Participation by Children and Young People with Life Limiting Conditions and Life Threatening Illnesses and their Families in Qualitative Research: First Steps in the Development of Effective Recruitment Strategies

North ThamesGeneric Health Relevance
Start Date: 1 Jan 2014

Project summary

Achieving high levels of participation in applied health research will increase the efficiency and timeliness of research. It will also increase its relevance by reducing bias. This project will focus on improving recruitment to qualitative research for patients with serious chronic diseases. These include children with life limiting illnesses and people with severe mental health problems. We are designing a mixed-methods research programme which includes: gathering data on the experiences, views and needs of families, recruiters and researchers in relation to recruitment; exploring why potential recruiters and eligible families decline to be involved in research; assessing the impact of recruitment practices on recruitment rates and sample biases.

The project will be submitted for external funding. The research will produce evidence based guidance on invitation and recruitment to qualitative studies. The results will directly benefit patients and families through greater opportunities.

Myra Bluebond-Langner