Stroke causes a greater range of disabilities than any other chronic condition in the United Kingdom. Stroke survivors experience loss of abilities and independence and express concerns about how their condition impacts their partners and family members, who often take on the role of informal caregiver in the home to support personal care and daily living.
Research has suggested that informal caregivers for stroke in the UK provide care worth up to £2.5 billion per year. This can come at a great personal cost to carers, threatening their physical health, connection with family and social networks, finances and emotional wellbeing.
The two stages of the project involve 1) t he development and 2) the evaluation of a carer-led, evidence-based approach to needs assessment and prioritisation of available support for carers of stroke survivors. The OSCARSS study will provide evidence about the impact of this approach on carers and stroke survivors (including quantitative and qualitative outcomes), as well as providing information related to health resource use and cost implications of this approach. OSCARSS has been specifically designed within the Stroke Association’s current models of support for stroke survivors and their carers, so that the approach could be seamlessly implemented into routine practice on a national level if outcomes are favourable.