Transitional Care for Young Adults with Long Term Conditions

North West Coast
Start Date: 24 Nov 2014 End Date: 30 Jun 2017


Young people with long-term health conditions remain under the care of children’s health care services until they are approximately 18 years old. At this point in their life, they need to move into the care of providers of adult health services. This important period, and the care provided, is usually known as ‘transitional care’. It is a time in the life of a person which is particularly important in their future development, in terms of their health and their future life time opportunities, including education, employment prospects and general wellbeing. This can sometimes involve a period of ‘shared-care’ between providers of children’s and adult services. However, our group’s and other groups’ previous research has shown that the organisation of transitional care (model) varies considerably between health conditions and within different parts of the UK. Young people often feel a sense of abandonment when leaving children’s services and services are often organised around the needs of healthcare professionals rather than the young person and family.

Project aim

The aim of the project is to select the important things that the authors think will have the biggest impact on improving transitional care. In this study we will focus on two long-term health conditions, epilepsy and arthritis, but we expect the results to be relevant for other long-term health conditions.

Prof Tony Marson